We're here for you along with dozens of local and national organizations trained specifically for your needs.
AGING
The Eldercare Locator is a free public service that connects older people and their families to valuable information on services and resources for senior citizens through state and local agencies as well as community-based organizations. The Eldercare Locator is a public service of the U.S. Administration on Aging administered by the National Association of Area Agencies on Aging. 800-677-1116 |
Our mission is to help you and your family plan and receive the care you deserve. Something is terribly wrong: The majority of Americans want to die at home surrounded by family and friends, but most end up dying in the hospital or nursing home, cared for by strangers. Half of Americans die in pain that could have been treated. Sick people have come to fear losing their dignity or burdening their families more than they fear death. And this is all happening in a country that is meant to prize the rights of individuals and champion respect for personal wishes. The non-profit Aging with Dignity was established because you and your family deserve better. We provide you with the practical information, advice and legal tools you need to ensure your wishes and those of your loved ones will be respected. By helping you improve your own quality of care, we can bring about dramatic change, one person at a time. The Five Wishes document helps you express how you want to be treated if you are seriously ill and unable to speak for yourself. It is unique among all other living will and health agent forms because it looks to all of a person's needs: medical, personal, emotional and spiritual. Five Wishes also encourages discussing your wishes with your family and physician. 888-5-WISHES (594-7437) |
THE FRIENDSHIP LINEFeeling isolated or lonely? Call the friendship line 24 hours toll free, a kinder help line for those in crisis.800-971-0016 |
GENERAL INFORMATION ON HOSPICE & END-OF-LIFE CARE
A free website that helps loved ones share information and support throughout a patient's significant health challenge. |
Hospice Foundation of AmericaProvides leadership in the development and application of hospice and its philosophy of care with the goal of enhancing the U.S. health care system and the role of hospice within it.202-457-5811 |
Advancing hospice and palliative care programs, education, research, and favorable policies around the world. 866-374-2472 |
A program of the National Hospice and Palliative Care Organization (NHPCO), is a national consumer and community engagement initiative to improve care at the end of life. |
END OF LIFE PLANNING
The Honoring Choices Pacific Northwest offers a website that is a comprehensive portal of resources from communities across the state. Our goal is to inspire adults of all ages to create their personal end-of-life care plans and connect people to the tools they need to get started. We also provide resources to guide people through sharing those plans with their loved ones and health care teams. |
MyDirectives is the first completely digital emergency, critical and advance care planning platform. Recognized by the U.S. Department of Health and Human Services, MyDirectives allows individuals to easily, quickly and securely download their electronic healthcare records, MyDirectives is also the only advance care planning platform to receive meaningful use certification from HHS. MyDirectives MOBILE is found exclusively in the Apple App Store and lets consumers place critical emergency health information in front of the lock-screen on the iPhone in conjunction with Apple Health |
People's Memorial Association (PMA) is the trusted resource and thought-leader for funeral choice, education, and advocacy in Washington State. We envision a future where everyone has access to after-death arrangements that reflect their personal values and resources. |
Dedicated to helping people talk about their wishes for end-of-life care. |
CARING FOR A LOVED ONE
End of life education materials for families and professionals |
Chronic Care Management https://www.cms.gov/files/document/chronic-care-management-factsheet.pdf |
The Elder Helpers program strives to safely and conveniently connect these dedicated, passionate volunteers with elders in their local communities.Education and Consultation in End of Life Care. |
Supports and sustains the important work of families nationwide caring for adult loved ones with chronic, disabling health conditions. A great website with lots of resources for the caregiver, how to care for someone with training videos and how to self-care. |
Consumer Directed Care programs allow individuals who need care to choose their own doctors, medications, medical equipment and non-medical personal care aides and supplies, all within limits. https://www.medicaidlongtermcare.org/basics/consumer-directed-care/ |
Education and Consultation in End of Life Care |
Zen Caregiving Project is a non-profit organization based in San Francisco, California with over 30 years of experience in practicing and teaching mindfulness-based, compassionate caregiving. We offer courses, workshops, and training for professional, family, clinical, and volunteer caregivers. Through our work, we provide a context for public discussion of caregiving, loss, and death. |
DEMENTIA AND ALZHEIMER'S
Mission: To eliminate Alzheimer's disease through the advancement of research; to provide and enhance care and support for all affected; and to reduce the risk of dementia through the promotion of brain health. Has newsletter by email or printed copy. 800-272-3900 |
Goal is to provide information, education and support to families caring for aging loved ones, especially those coping with Alzheimer's Disease and related dementia. |
CHILDREN'S HOSPICE CARE
CHI provides education, training and technical assistance to those who care for children with life-threatening conditions and their families. 703-684-0330 |
GRIEVING FOR A LOVED ONE
Assists families toward the positive resolution of grief following the death of a child of any age and provides information to help others be supportive. |
Friends for Survival is a national bereavement outreach organization available to those who are grieving a suicide death of family or friends. |
Raises awareness about the needs of children and teens who are grieving a death and provides education and resources for anyone who supports them. Through the collective voice of our members and partners, we educate, advocate and raise awareness about childhood bereavement. (866) 432-1542 |
Refuge in GriefGrief support that doesn't suck. Megan Devine created Refuge in Grief to tell the truth about grief, with no sugar coating. |
Soaring Spirits has one goal, to connect widowed people with each other. |
Led by grief counselor and educator Dr. Alan Wolfelt, the Center for Loss and Life Transition is an organization dedicated to helping people who are grieving and those who care for them with resources and understanding. |
Provides support in a safe place where children, teens, young adults, and their families grieving a death can share their experiences. Supports individuals and organizations seeking to assist children in grief. 866-775-5683 |
The Resilient Parenting for Bereaved Families (RPBF) Program is a 10-session group program for caregivers of children who have experienced the death of a parent. Our program teaches practical parenting and self-care tools that have been shown to promote resilience for both children and caregivers. |
GRIEVING FOR A PET
Explore some of Lap of Love's pet loss support resources and discover the best ways to begin processing your painful loss. |